Disability
Information - Diabetes |
General
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Education
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Michigan
Resources, Support Groups, Listservs & Websites
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General Information |
What Is Diabetes?
http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=38EA640D-2A5E-7B6E-16E279F5B7A520F0
Diabetes (medically known as diabetes mellitus) is the name given
to disorders in which the body has trouble regulating its blood
glucose, or blood sugar, levels. There are three types of diabetes:
type 1, type 2, and gestational diabetes. Type 1, also called juvenile
diabetes or insulin-dependent diabetes, is a disorder of the body's
immune system—that is, its system for protecting itself from viruses,
bacteria or any "foreign" substances. Type
1 diabetes occurs when the body's immune system attacks and destroys
certain cells in the pancreas, an organ about the size of a hand that
is located behind the lower part of the stomach. These cells—called
beta cells—are contained, along with other types of cells, within
small islands of endocrine cells called the pancreatic islets. Beta
cells normally produce insulin, a hormone that helps the body move the
glucose contained in food into cells throughout the body, which use it
for energy. But when the beta cells are destroyed, no insulin can be
produced, and the glucose stays in the blood instead, where it can
cause serious damage to all the organ systems of the body.
For this reason, people with type 1
diabetes must take insulin in order to stay alive. This means
undergoing multiple injections daily, or having insulin delivered
through an insulin pump, and testing their blood sugar by pricking
their fingers for blood six or more times a day. People with diabetes
must also carefully balance their food intake and their exercise to
regulate their blood sugar levels, in an attempt to avoid hypoglycemic
(low blood sugar) and hyperglycemic (high blood sugar) reactions,
which can be life threatening. The
warning signs of type 1 diabetes include extreme thirst; frequent
urination; drowsiness or lethargy; sugar in urine; sudden vision
changes; increased appetite; sudden weight loss; fruity, sweet, or
wine-like odor on breath; heavy, labored breathing; stupor; and
unconsciousness. Generally, type 1
diabetes is diagnosed in children, teenagers, or young adults.
Scientists do not yet know exactly what causes type 1 diabetes, but
they believe that autoimmune, genetic, and environmental factors are
involved.
What are diabetes complications?
http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=4CC09737-2A5E-7B6E-11612C2856733A59
While insulin allows a person with type 1 diabetes to stay alive,
it does not cure the disease, nor does it prevent the development of
serious complications, which can be many and varied. High blood sugar
levels eventually damage blood vessels, nerves, and organ systems in
the body.
Diabetes: Preventing Diabetic Complications
American Academy of Family Physicians
http://familydoctor.org/handouts/356.html
Diabetic complications are health problems caused by diabetes.
Diabetes causes your blood sugar level to be higher than normal. Over
time, high blood sugar levels can damage the blood vessels and nerves
in your body. This damage can cause problems in many areas of the
body. The main areas where there may be problems are the nerves and
blood vessels in the eyes, kidneys, legs and feet. This handout will
tell you about some of the complications and how to help prevent them.
Diabetes Myths and Facts
http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=4CAAD6AD-2A5E-7B6E-13765DE7F59E8016
Many "myths" exist among the general public about type 1 diabetes.
Along with the confusion that exists about the difference between
types 1 and 2, there are many misunderstandings and misperceptions, as
well as a general underestimation of the seriousness of the disease.
Why We Need A Cure
http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=38EC05E6-2A5E-7B6E-16544A2244F4CF8D
Every hour of every day, someone is diagnosed with juvenile (type
1) diabetes, the most severe form of a disease that annually accounts
for almost $100 billion in health care costs in the U.S. alone.
Usually striking before the age of 30, juvenile diabetes takes a harsh
toll on people. Not only will they be insulin-dependent for life, but
devastating life-limiting and life-shortening complications such as
blindness, amputation, heart disease and stroke, and kidney failure
are an ever-present threat. Insulin is not a cure for the disease—it
is merely life support.
Diabetes Overview
National Diabetes Information Clearinghouse
http://www.niddk.nih.gov/health/diabetes/pubs/dmover/dmover.htm
Almost everyone knows someone who has diabetes. An estimated 17
million people--6.2 percent of the population--in the United States
have diabetes mellitus--a serious, lifelong condition. About 5.9
million people have not yet been diagnosed. Each year, about 1 million
people age 20 or older are diagnosed with diabetes.
Diabetes Dictionary Index
National Diabetes Information Clearinghouse
http://www.niddk.nih.gov/health/diabetes/pubs/dmdict/dmdict.htm
This dictionary defines words that are often used when people talk
or write about diabetes. It is designed for people who have diabetes
and for their families and friends.
Take Charge of Your Diabetes: Glossary
National Center for Chronic Disease Prevention and Health
Promotion
http://www.cdc.gov/diabetes/pubs/tcyd/appendix.htm
A Child with Diabetes Is In Your Care
http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=A71E2615-1C66-4017-BE0AC0D93D093374
This information is for people who may from time to time be
responsible for a child with diabetes. It is designed to provide basic
information about Type 1 (insulin-dependent or juvenile) diabetes so
that you can feel comfortable with the child.
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Education & Classroom
Accommodations |
School Bill of Rights for Children with Diabetes
http://www.childrenwithdiabetes.com/d_0q_100.htm
Children with diabetes require medical care to remain healthy. The
need for medical care does not end while the child is at school.
The Law, Schools, and Your Child with Diabetes
http://www.childrenwithdiabetes.com/d_0q_600.htm
The right of children with diabetes to care for their diabetes at
school is based on the Section 504 of the Rehabilitation Act of 1973,
the Americans with Disabilities Act, and the Individuals with
Disability Education Act (IDEA). These laws provide protection against
discrimination for children with disabilities, including diabetes, in
any program or activity receiving federal financial assistance. This
includes all public schools and day care centers and those private
schools and centers that receive federal funds.
Information for Teachers
http://www.childrenwithdiabetes.com/d_0q_200.htm
Teachers and child-care providers are likely to have a child with
Type 1 diabetes in their care at some point in their career. This page
provides basic information about diabetes, offer suggestions for how
to care for children with diabetes, and refers you to other sources of
information.
Diabetes Management at School
http://www.childrenwithdiabetes.com/d_0q_500.htm
This guide provides an outline for school districts to use in
designing a diabetes management program. The specific roles and
actions that various staff need to perform are identified and
supporting materials are included. Each page can be displayed in a
format that is easy to print so you can use this as your diabetes
management plan.
Sample 504 and IEP Plans
http://www.childrenwithdiabetes.com/504/
These sample 504 plans and IEPs are arranged by grade. Each is
stored in Microsoft Word 2000 format. You are free to use these for
your child or children. Click on the link to display or download the
Word document.
Before School Starts
http://www.childrenwithdiabetes.com/d_0q_300.htm
Each school reacts differently to children that need a little
extra attention. And children with diabetes do need a little extra
attention, especially when they are very young. If you are approaching
your first school year with diabetes, here's a list of things you
should do before school starts.
One-page Instruction Sheet for Teachers
http://www.childrenwithdiabetes.com/d_0q_420.htm
When you send your child to school, you should include some kind
of instructions for the teacher that describe what you expect of the
teacher. The instructions should include a list of symptoms that your
child exhibits when he or she is hypoglycemic, when you expect the
child to perform blood glucose tests, and how to respond to episodes
of hypoglycemia.
Information on Diabetes for Classmates
http://www.childrenwithdiabetes.com/d_0q_421.htm
We know that diabetes is caused by someone's body losing its
ability to make insulin. Children with diabetes need to take shots of
insulin each day to let their bodies use the blood sugar (glucose)
that feeds each cell and gives us energy to move and think. Our bodies
make glucose from the food we eat.
Schools Database
http://www.childrenwithdiabetes.com/schools/
You can use the Schools Database to see if your elementary or high
school allows blood testing in the classroom and whether there is a
full time school nurse. If your school is not shown, send an e-mail to
info@childrenwithdiabetes.com with the school name, address, and
NCES ID. The NCES ID is a four or five digit number unique to each
public school in the United States.
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Michigan
Resources, Support Groups, Listservs & Websites |
Juvenile Diabetes
Research Foundation Metro Detroit & SE Michigan Chapter
24359 Northwestern Highway, #225
Southfield, MI 48075
(248)355-1133
metrodetroit@jdrf.org
MW-Region Walk Office
4678 Lilly Court
West Bloomfield, MI 48323
(248) 669-2212
(248) 669-2334 fax
jfishkind@jdrf.org
Juvenile Diabetes Research Foundation West Michigan Chapter
5075 Cascade Road SE, Suite F
Grand Rapids, MI 49546
(616)957-1838
westmichigan@jdrf.org
University of Michigan DRTC
Martha Funnell, M.S., R.N., C.D.E.
Michigan Diabetes Research and Training Center
1331 E. Am, Room 5111, Box 0580
University of Michigan Medical School
Ann Arbor, MI 48109-0580
Phone: (734) 763-5730
Fax: (734) 647-2307
Email: mfunnell@umich.edu
Internet:
www.med.umich.edu/mdrtc
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National Resources &
Websites |
American Diabetes
Association (ADA)
http://www.diabetes.org/main/application/commercewf
The American Diabetes Association is the nation's leading
nonprofit health organization providing diabetes research, information
and advocacy. Founded in 1940, the American Diabetes Association
conducts programs in all 50 states and the District of Columbia,
reaching more than 800 communities.
American Dietetic Association (ADA)
http://www.eatright.org/
Diabetes Exercise and Sports Association (DESA)
http://www.diabetes-exercise.org/
Diabetes Exercise & Sports Association (DESA) exists to enhance
the quality of life for people with diabetes through exercise and
physical fitness.
Children with Diabetes
http://www.childrenwithdiabetes.com/index_cwd.htm
Juvenile Diabetes Research Foundation International (JDRF)
http://www.jdrf.org/
The mission of JDRF is to find a cure for diabetes and its
complications through the support of research. Type 1 diabetes is a
disease which strikes children suddenly and requires multiple
injections of insulin daily or a continuous infusion of insulin
through a pump just to survive. Insulin, however, is not a cure for
diabetes, nor does it prevent its eventual and devastating
complications which may include kidney failure, blindness, heart
disease, stroke, and amputation.
The National Institute of Diabetes and Digestive and Kidney
Diseases (NIDDK)
http://www.niddk.nih.gov/
The National Institute of Diabetes and Digestive and Kidney
Diseases (NIDDK) is the Government's lead agency for diabetes
research. The NIDDK operates three information clearinghouses of
potential interest to people seeking diabetes information and funds
six Diabetes Research and Training Centers and eight Diabetes
Endocrinology Research Centers.
National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)
http://www.niddk.nih.gov/health/kidney/kidney.htm
Mission: To provide information about kidney and urologic diseases
to the public, patients and their families, and health care
professionals. NKUDIC also works with related organizations to educate
people about kidney and urologic diseases, answers inquiries, and
develops and distributes publications. NKUDIC is a service of the
NIDDK.
Weight-control Information Network (WIN)
http://www.niddk.nih.gov/health/nutrit/win.htm
Individual centers produce a variety of diabetes education
materials. For information about publications and programs, contact
the individual centers found on their website.
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Articles Related to this
Disability |
CA
Parents Sue
Schools, Seek Help For Diabetic Students - Three Danville parents,
another from Fremont and the American Diabetes Association filed a lawsuit
Tuesday to require California public schools to assist in insulin injections
and provide other help for diabetic students.
Study:
Diabetic Teens Show Premature Arterial Stiffening - A new study
has found that adolescents with Type 2 diabetes have arteries as stiff
as those of middle-aged men.
MI
Group Wants Broader Diabetes Testing in Schools
- With more than 13,000 young people being diagnosed each
year with Type 1 diabetes, the American Diabetes Association has
launched a campaign that calls for the training of non-medical
personnel to assist students with diabetes in the absence of a school
medical staffer.
Promise of a cure for diabetes:
Mom makes deal with teen daughter
Read the
article "Fight Stress
and Fight Diabetes"
Read the Jacksonville Times-Union article "More
children suffer 'adult' diabetes" -
Experts cite rise in obesity among young.
Read the San Francisco Chronicle's article "Summit
to rouse schools about child obesity"
- Emphasis will be on teaching good
habits.
FDA Approves
Glucowatch Device for Children with Diabetes
Food and Drug Administration
http://www.fda.gov/bbs/topics/NEWS/2002/NEW00830.html
The Food and Drug Administration (FDA) has approved a
wrist-watch-like glucose monitoring device for use by children and
adolescents with diabetes. The device, which was approved for adult
use in March 2001, provides information that can be used to detect
trends and track patterns in glucose levels.
Young Adults with Insulin-Treated Diabetes Have Elevated Stroke
Risk
American Heart Association
http://www.americanheart.org/presenter.jhtml?identifier=3007660
People with insulin-dependent (type-1) diabetes have an increased
risk of dying from a stroke, according to first-time findings from a
large, community-based study reported in today’s rapid access issue of
Stroke: Journal of the American Heart Association.
Earlier Detection of Diabetic Nephropathy
http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=4AF9B278-2A5E-7B6E-10895A8A44ED2B9F
JDRF-funded researchers in Minnesota and Italy have found that a
common laboratory test gives some patients with type 1 (juvenile)
diabetes earlier warning that they are developing diabetic
nephropathy, or kidney disease.
What is islet transplantation?
http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=F1C78EF9-2A5E-7B6E-1280881F232770C9
The only way to cure diabetes for people who already have the
disease is to replace the destroyed beta cells or replace their
function. Whole-pancreas transplants have been successful for many
years, restoring insulin production in people with advanced diabetes,
but because of significant risks the procedure has been limited
primarily to recipients who are also undergoing kidney
transplantation.
Genetically Modified Stem Cells Prevent Diabetes in Mice
http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=FECFD76B-2A5E-7B6E-11FE6A0CEEB461F1
Scientists at a JDRF research center in Australia have prevented type
1 (juvenile) diabetes in mice by genetically modifying the animals’
stem cells so they signal the immune system not to attack the
insulin-secreting beta cells.
A Bitter Pill -- A School's Drug Policy Sours One Teenager's
Experience with Glucose Tablets
by Melissa Sattley
http://www.childrenwithdiabetes.com/d_0n_401.htm
Thirteen-year-old Eric Carr didn't think much of it when two
classmates saw him taking a glucose tablet and asked to try one.
Insulin-dependent since the age of nine, Eric figured glucose was
harmless, something that simply kept his sugars from dropping. Little
did he realize that sharing the tablets would lead to a week-long
suspension from Hollenbeck Middle School in St. Peters, Missouri and a
permanent blemish on his school records.
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Medical
Information |
MI
Bay City Doctor
Uses Maggots to Help Save Foot of Diabetes Patient
- Barbara Enser wasn't very comfortable at first with the
idea of using maggots to clean the wound on her right foot. But if it
meant saving it from amputation, she was willing to give it a try.
Health
Journals for Parents of Kids with Special Needs - "When my
daughter was diagnosed, I created a health journal to help organize
all of her medical information. Soon, the clinic asked me to make 40
more for the other parents." The Little Acorn now offers many versions
of this book which have been customized to fit specific disabilities.
Visit the website for more details or to order. Available items (New
products added often - see website for current offerings): "Juggling
Autism" Starter Kit, "Juggling Cystic Fibrosis” Starter Kit, "Juggling
Down Syndrome” Starter Kit, "Juggling Cerebral Palsy" Starter Kit,
"Juggling Asthma" Starter Kit, "Juggling Diabetes" Starter Kit,
"Healthy Kids” Starter Kit, "A Woman's Health Journal", and "The
Courage Book”
Diabetes
Dictionary - Online Diabetes dictionary derived from the
original one produced by the United States National Institute of
Diabetes and Digestive and Kidney Disease. Also has links to related
sites.
Diabetes Monitor For Kids -
Kids with diabetes now have a painless way to keep track of
their blood sugar.
The Food and Drug Administration has approved the
GlucoWatch device -- a monitor worn on the wrist that
uses tiny electric currents to check
blood sugar -- for use by children aged
seven to 17, The Associated Press reports.
GlucoWatch was approved for adults last
year, the AP says. While it doesn't replace
finger-stick blood tests, the device allows
for more frequent monitoring, and may help
catch dangerous blood sugar drops more
quickly, especially when complications occur during
sleep.
Serum Creatinine Test: Monitoring kidney function
Mayo Foundation for Medical Education and Research
http://www.mayoclinic.com/invoke.cfm?id=SA00007
Among the complications diabetes can cause is damage to the small
blood vessels in your body. Your kidneys contain a wealth of these
vessels and so are highly vulnerable to such damage.
Paths to a Cure
http://www.jdrf.org/index.cfm?fuseaction=home.viewPage&page_id=EC0F5953-2A5E-7B6E-1D6506605F55090B
In 1997, JDRF established three research cure goal areas that are
still in place: restoring normal blood sugar levels, preventing and
reversing complications, and preventing juvenile (type 1) diabetes.
JDRF-funded researchers are making encouraging progress in all three
areas.
Alternative Therapies for Diabetes
National Diabetes Information Clearinghouse
http://www.niddk.nih.gov/health/diabetes/summary/altmed/altmed.htm
Alternative therapies are treatments that are neither widely
taught in medical schools nor widely practiced in hospitals.
Alternative treatments that have been studied to manage diabetes
include acupuncture, biofeedback, guided imagery, and vitamin and
mineral supplementation. The success of some alternative treatments
can be hard to measure. Many alternative treatments remain either
untested or unproven through traditional scientific studies.
Genes and Disease: Juvenile Onset Diabetes
National Center for Biotechnology Information
http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd.section.137
Diabetes is a chronic metabolic disorder that adversely affects
the body's ability to manufacture and use insulin, a hormone necessary
for the conversion of food into energy.
Current Clinical Trials:
• JDRF-sponsored and co-sponsored ongoing clinical research trials
relevant to juvenile (type 1) diabetes and its complications. All
trials have been reviewed and approved by appropriate human subjects
review boards and have been reviewed by both JDRF scientific and lay
review committees.
• www.ClinicalTrials.gov
lists NIH-sponsored trials that have been scientifically
reviewed through NIH mechanisms and approved by government council.
Although NIH-sponsored trials may be of scientific and medical value,
JDRF has not reviewed these studies and therefore cannot endorse
participation in them.
• www.ClinicalTrials.gov:
Diabetes Mellitus, Insulin-Dependent from the National
Institutes of Health
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Books
& Videos |
The Other Diabetes: Living And Eating Well With Type 2 Diabetes
Elizabeth N. Hiser
http://search.barnesandnoble.com/booksearch/isbnInquiry.asp?userid=2VNFOXDLOW&isbn=
0060088133&itm=5
Author Elizabeth Hiser offers a consumer guide to type 2 diabetes,
the more common and less well-understood form of the disease. Of the
estimated 16 million cases of diabetes in the United States today,
nine out of ten are the "other" diabetes, type 2, the kind related to
too much rather than too little insulin. The Other Diabetes reviews
how genetics, excess calories, and a sedentary lifestyle contribute to
type 2 diabetes; how insulin resistance is the hallmark of the
disease; how people can lose weight and keep it off; how exercise can
work for anyone; and how to avoid the most lethal complication of type
2 diabetes - early death from heart disease. The Other Diabetes is
also a comprehensive nutrition handbook.
Sugar Was My Best Food: Diabetes and Me
Carol Antoinette Peacock, Mary Jones (Illustrator), Kyle Carney
Gregory
http://search.barnesandnoble.com/booksearch/isbnInquiry.asp?userid=2VNFOXDLOW&isbn=
0807576484&itm=6
An eleven-year-old boy describes how he learned that he had
diabetes, the effect of this disease on his life, and how he learned
to cope with the changes in his life.
Even Little Kids Get Diabetes: And Albert Whitman Prairie Book
Connie White Pirner, Nadine Bernard Westcott (Illustrator)
http://search.barnesandnoble.com/booksearch/isbnInquiry.asp?userid=2VNFOXDLOW&isbn
=0807521590&itm=13
Even little kids get diabetes. When she was two years old, the
girl in this book got really sick and skinny and had to go to the
hospital. That's when she found out she had diabetes. Now she knows
all about getting insulin shots every day, and testing to see if she
has too much sugar or too much insulin. She knows just what to eat and
when. But most of all, she knows that in spite of everything, she's
just a regular kid.
Living with Juvenile Diabetes: A Practical Guide for Parents and
Caregivers
Victoria Peurring
http://search.barnesandnoble.com/booksearch/isbnInquiry.asp?userid=2VNFOXDLOW&isbn=
1578260574&itm=18
Author Victoria Peurrung, mother to two children with juvenile
diabetes, provides answers and coping strategies for families
everywhere that are struggling with juvenile diabetes. Living with
Juvenile Diabetes offers practical tips and ideas for parents,
teachers, coaches and other caregivers who deal with children with
Type 1 diabetes.
Sugar Isn't Everything: A Support Book, in Fiction Form, for the
Young Diabetic
Willo Davis Roberts
http://search.barnesandnoble.com/booksearch/isbnInquiry.asp?userid=2VNFOXDLOW&isbn=
0689712251&itm=19
A detailed description of juvenile-onset diabetes (Type I) using a
fictional form in which eleven-year-old Amy discovers that she has the
disease, learns to treat it and to deal with her anger, and finally
accepts that she CAN live with it.
Cooking Up Fun for Kids with Diabetes
Patti B. Geil, Tami A. Ross
http://search.barnesandnoble.com/booksearch/isbnInquiry.asp?userid=2VNFOXDLOW&isbn=
1580401341&itm=20
Discusses healthy eating and nutrition for children with type 1
and type 2 diabetes and provides recipes for main dishes, snacks, and
desserts. Includes "fun food facts."
Sarah and Puffle: A Story for Children about Diabetes
Linnea Mulder, Joanne H. Friar (Illustrator)
http://search.barnesandnoble.com/booksearch/isbnInquiry.asp?userid=2VNFOXDLOW&isbn=
094535441X&itm=22
What can a talking lamb possibly have to say to a child with
diabetes? Plenty. In this upbeat story, a stuffed animal comes to life
in time to help a young girl, who is feeling pretty angry and sad
about her condition. Puffle's funny little rhymes are chockful of
valuable advice sure to comfort all children with diabetes and to
further understanding by siblings and friends. Parents will
particularly appreciate the clearly written introduction before
sitting down to giggle—and learn—with their children.
In Control: A Guide for Teens with Diabetes
Jean Betschart, Susan Thom
http://search.barnesandnoble.com/booksearch/isbnInquiry.asp?userid=2VNFOXDLOW&isbn=
0471347426&itm=39
Finally, a book about diabetes that you'll actually want to read!
This helpful and highly readable guide explains everything you need to
know to get you through the teen years. Straightforward and current,
this one-of-a-kind book tackles the issues and answers the questions
you may face.
Real Life Parenting of Kids with Diabetes
Virginia Nasmyth Loy
http://search.barnesandnoble.com/booksearch/isbnInquiry.asp?userid=2VNFOXDLOW&isbn=
1580400833&itm=44
Virginia Loy has been the chief engineer behind the successful
management of her two sons' diabetes for more than 12 years. Her sons,
Spike and Bo Loy, have written a book to help kids growing up with
diabetes, Getting a Grip on Diabetes, and now Virginia makes her own
contribution to parents of children with diabetes. Virginia reveals
her organized, experienced, and practical advice for helping children
cope with and manage their diabetes from elementary school through
college.
Everyone Likes to Eat: How Children Can Eat Most of the Foods They
Enjoy and Still Take Care of Their Diabetes
Hugo J. Hollerorth, Debra Kaplan, Anna Maria Bertorelli
http://search.barnesandnoble.com/booksearch/isbnInquiry.asp?userid=2VNFOXDLOW&isbn=
0471346829&itm=46
Here's the only guide for kids with diabetes that's packed with
fun activities, new medical insights, and a lot of good food for
thought.
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